How to Donate

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FOP Friends is a fully registered charity in England and Wales 1147704 and in Scotland SC046950

We are proud to declare that over 95% of fundraised money goes to supporting our quest to find a treatment and a cure for FOP as well as providing support for those who are living with this truly painful and challenging condition.

We are registered with the Fundraising Regulator and abide by their standards.   

We are not a big charity.  We are not funded by the government or the  NHS.

Money raised by our fabulous supporters go towards our quest for a treatment and a cure, and to support those living with FOP.  Many of our projects are funded thank to generous grants we secure as a charity.

Your donations make a difference: no donation or event is too small.  Every penny makes a difference.


Our preferred fundraising platform is Enthuse.

We know there are other platforms out there but we use Enthuse as our main platform as it allows us to connect with our fundraisers and supporters.

Each and every fundraiser is incredibly important to us, so we like to know about your efforts so we can share and celebrate them with you! Using Enthuse allows us to know what’s going on and when, so we can cheer you on and give you any support you may need.

Setting up a fundraising page is simple, but if you would like us to set one up for you, just get in touch!

Thank you!

There are many ways to support FOP Friends:

Gift Aid it!  #TickTheBox

By gift-aiding your donation you can add an extra 25% to your donation at no extra cost to yourself.  Click here for FAQs about gift-aiding your donation.

It is easy to giftaid a donation using Enthuse, you just #TickTheBox.

If you would like to make a donation with cash or a cheque, please click here to download our Gift Aid Form.

Donor Charter

FOP Friends is grateful to all the generous donors who support the charity on its journey to raise awareness, support families, and find a treatments and a cure for FOP.  Without your support, we would not be able to continue our work.

When you donate to FOP Friends, we commit to always:


  • Informing donors about how the charity intends to use all donations
  • Using donations responsibly, ensuring the best for the charity and the UK FOP community
  • Communicating honestly, professionally, and in a timely manner
  • Respecting the donor’s right to confidentiality and anonymity
  • Keeping donors updated with emails, newsletters, and social media posts