How to Donate

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FOP Friends is a registered charity in England and Wales (1147704) and Scotland (SC046950).

More than 95% of every donation goes directly towards our mission: finding a treatment and ultimately a cure for fibrodysplasia ossificans progressiva (FOP).

We also provide essential support for individuals and families facing both FOP and progressive osseous heteroplasia (POH), two incredibly painful and challenging conditions.

As a registered member of the Fundraising Regulator, we adhere to their high standards.

We are a small but dedicated charity, powered by the generosity of our supporters. We receive no government or NHS funding.

We rely on the generosity of our incredible supporters to drive our search for treatments and a cure for FOP, and to provide vital support to those living with FOP and POH.  In addition to individual donations and supporters’ fundraising events, we pursue grant funding to maximise our impact and fund projects.

Every donation, no matter the size, is deeply appreciated and makes a real difference.

We encourage you to use Enthuse for your fundraising.

It’s our preferred platform because it allows us to stay connected with our amazing fundraisers, celebrate your successes, and offer support along the way.

Creating a fundraising page is simple, but we’re here to help if you’d like us to set one up for you.

Thank you for your support!

Let’s get started… fopfriends.enthuse.com/profile

There are many ways to support FOP Friends:

Gift Aid it!  #TickTheBox

By gift-aiding your donation you can add an extra 25% to your donation at no extra cost to yourself.  Click here for FAQs about gift-aiding your donation.

It is easy to giftaid a donation using Enthuse, you just #TickTheBox.

If you would like to make a donation with cash or a cheque, please click here to download our Gift Aid Form.

At FOP Friends, we deeply appreciate the generosity of every donor who joins us in our mission to raise awareness, support families, and pursue treatments and a cure for FOP. Your partnership is essential to our work.

When you donate to FOP Friends, we commit to:

 

  • Informing donors about how the charity intends to use all donations
  • Using donations responsibly, ensuring the best for the charity and the UK FOP community
  • Communicating honestly, professionally, and in a timely manner
  • Respecting the donor’s right to confidentiality and anonymity
  • Keeping donors updated with emails, newsletters, and social media posts