Research

This is an exciting time for the FOP community.  Globally and in the UK, there are a number of active clinical trials and studies investigating effective treatments for FOP.

Whilst FOP is a considered an ultra-rare condition, there are many research institutions, pharmaceutical companies, and other organisations activity looking into an effective treatment and cure for FOP.

Although FOP is an incredibly rare disease, there a significant number of pharmaceutical companies who are actively looking into a range of drugs that may provide that treatment and cure that we all so desperately want and need.  Whilst not all of these drugs will become a treatment, the learning will inform researchers’ work and hopefully, will ultimately help to find the drug/s that will make FOP a manageable condition.

FOP Friends actively funds the FOP research team at the University of Oxford, led by Professor Alex Bullock. Without the financial support from us, they would not be able to continue the focused work they are doing to find a treatment for FOP.

FOP Friends also works in partnership with the IFOPA and other organisations to support the Accelerating Cures and Treatments (ACT) for FOP.  The programme encourages innovative research into finding a way to treat FOP.

See all the drugs currently in development for FOP here.