Sienna is a dynamic two-year old with a passion for flowers, swings, swimming,animals, Tex-Mex and Mott’s Applesauce Pouches.

She has a great sense of humor and has been known to spend entire doctors' appointments making raspberry noises (which is a great help when so many of her appointments have been so serious). She has a very high energy level and until her diagnosis we had always encouraged an active lifestyle.

Now she wears a protective helmet and we are encouraging safer activities such as art, computers and swimming.

Sienna was diagnosed with FOP just a month after her second birthday.  Sienna was born with the classic malformation of the big toe and despite seeing a team of orthopedic foot experts in Dallas since birth, she was not diagnosed until she went through several months of flare-ups starting at 20 months.

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