Medical Information

Fibrodysplasia Ossificans Progressiva (FOP) literally means "Soft Connective Tissue That Progressively Turns to Bone".  It was known until the 1970s as Myositis Ossificans Progressiva, which means "Muscle Turns Progressively to Bone".

FOP is an inherited condition, though in most cases it results from a simple gene mutation, rather than being from someone who has a family history of the condition.  Only one copy of the mutated gene is needed to result in the disorder popping up.  As such, someone with FOP has a 50% chance of passing it on to their children, if they were able to have them. 

We have provide some important FOP facts compiled from a number of sources (IFOPA, UPenn, Oxford).  However for more extensive medical information, help guidance, and guides for family members and those dealing with FOP please visit the IFOPA.

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