IFOPA, USA
The IFOPA mission is to fund research to find a cure for FOP while supporting individuals and their families through education, public awareness and advocacy.
The International FOP Association is a 501(c)(3) non-profit organization supporting medical research, education and communication for those afflicted by the rare genetic condition Fibrodysplasia Ossificans Progressiva (FOP).
Founded in 1988 by Jeannie Peeper, a woman with FOP, the IFOPA was originally established because Ms. Peeper wanted to bring people with FOP together. Today, the organization has grown to include members across the globe, supports FOP research at the University of Pennsylvania School of Medicine at a rate of approximately $500,000 annually and is a life-support to those who suffer from FOP.
