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FOP Friends, formerly Friends of Oliver, was established on the 1st March 2012 to raise money and awareness for the rare genetic condition Fibrodysplasia Ossificans Progressiva (FOP).
Full charitable status in England and Wales status was subsequently applied for and granted on the 15th June 2012 (Charity #1147704). Friends of Oliver was also recognised as a charity for tax purposes by UK HMRC on the 17th August 2012.
It was founded by Oliver’s father, Chris, and his aunties Alison and Rachel. It is registered with the Charity Commission Number 1147704. The main aim of the charity is to raise much needed funds to support research into FOP internationally. The charity also aims to raise public awareness and understanding of FOP and to promote education and research into the study and cure of FOP.
The charity presently receives no government or Lottery funding and is wholly reliant on the contributions made by family, friends and the public.
Money received by "Friends of Oliver" is shared between the brilliant research teams at the University of Oxford, England, and the IFOPA which supports the research programme at the University of Pennsylvania, Philadelphia, USA. Research at the University of Oxford receives no funding from the UK government and relies on donations to enable its research programme to continue its excellent work into finding a treatment and a cure for this terrible and debilitating condition.