My mummy and daddy worked hard and "Friends of Oliver" is now a fully registered charity in England and Wales (#1147704). To help with that I have a shiny new website. You may remember my old one which was a way to say a big thank you to my friends and family who support our search for a cure.
My new site is not only that but also somewhere other families and friends can find out information about my condition, what is going on with FOP research around the world (how your money and support is helping) and details on how you can help, donate and get involved.
We are always happy for anyone to contact us should they have the misfortune of finding themselves or a loved one that 1 in 2,000,000th person who has to deal with this condition.