A Dedicated Supporter

A Dedicated Supporter

tattoo image

This week, one of our lovely supporters went the extra mile by getting the FOP Friends logo tattooed on his arm! What an ingenious way to raise awareness for FOP - if that's not dedication, I'm not sure what is!

Not everyone has to do something permanent to raise money or awareness for FOP though. Why not do something semi-permanent such as chopping your hair for FOP? Or why not organise a simple dress down day at work and get all your colleagues to donate to the cause? A little can go a long way and every penny is valued. Look out in the next couple of weeks for an A-Z list of easy fundraising ideas to get you inspired for 2017!  


If you're feeling particularly motivated right now, don't hesitate in signing up to the Great North Run this year and running for our team! Don't worry if you don't have a direct link to the charity, we would still love it if you ran for us! Places are filling up fast so don't miss out on a spot.

There was some sad news in the FOP community this week. Adrian Berry, a sufferer of FOP, sadly lost his life at just 40 years-old. This is a devastating reminder of how cruel FOP can be and reaffirms how important it is that we all work together to hopefully one day find treatments for FOP. 

If you haven't already, don't forget to like us on Facebook and follow us on Twitter to keep up-to-date with all the latest news. 

Hannah Dempsey

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